Faire un don à STXBP1 France

in favour of STXBP1 France

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Selection	Donation
Donation	0 €
Your contribution to HelloAsso	0.75 €
Total	0.75 €

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Venir en support aux patients et leur famille.

Notre association a pour but de venir en support aux patients et leur famille.

Nous souhaitons sensibiliser le grand public à cette maladie génétique, mais également accélérer la recherche d’un traitement.

Nous travaillons avec les familles, les autres associations, des médecins, des scientifiques et des laboratoires pharmaceutiques.